What to ask your doctor about living with soft tissue sarcoma

Some questions you might ask your doctor

How will my treatment affect me?
I live alone - how will I manage when I come out of hospital?
Is it possible to get a stay in a convalescent home or hotel?
How do I get to see the social worker here?
Is there anything I shouldn’t do after limb sparing surgery?
What should I do if I am concerned about my arm / leg?
If I need an amputation, when will I get a limb prosthesis?
Will I have to pay for a prosthesis?
Who will help me get used to the prosthesis?
Do I need any special rehabilitation?
How often will I need a new prosthesis?
What problems should I look out for with my prosthesis?
Will I ever get back to normal, or will I have some long term effects?
Will I be able to go back to work?
Where can I get help with claiming benefits and grants?
What practical help is available?
Where can I get help dealing with my feelings?
Can you refer me for counselling?
Do I have to pay for counselling?
Could you refer me to a specialist nurse?

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